Parental Values During Tracheostomy Decision-Making for Their Critically Ill Child: Interviews of Parents Who Just Made the Decision.

ABSTRACT: Background: Pediatric tracheostomy decisions are challenging for clinicians and parents, especially when a child's survival/neurodevelopmental outcome is uncertain. Better understanding of parents' values over the decision period is crucial for clinical decision-making. Objective: To describe parents' values during tracheostomy decision-making for their critically ill child and to identify opportunities to improve parent-clinician shared decision-making (SDM). Methods: We thematically analyzed 12 semi-structured interviews with parents who recently faced a tracheostomy decision for their critically ill child. Three study team members with qualitative expertise reviewed the transcripts, identifying key topics independently. A codebook was developed, and data were coded.

SUBMITTER: Yan H 

PROVIDER: S-EPMC12468954 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature