Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis.

ABSTRACT:

Background

Many high-income countries are seeking to adapt services to meet the needs of the growing population of children with medical complexity and their families but concerns have been raised about the quality of this care. To understand family caregivers' experiences of services and identify priorities for improvement we need to synthesise research about families' experiences of services for children with medical complexity.

Objectives

To systematically identify and synthesise the qualitative evidence of family caregivers' experiences of health, care and education services for children with medical complexity.

Methods

Systematic searches were conducted in MEDLINE, CINAHL, EMBASE, PsycINFO and ERIC from January 2011 to March 2024. Studies were assessed for method

SUBMITTER: Page B 

PROVIDER: S-EPMC12480434 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature