Quality of life of persons with young-onset dementia: Repeated self-reported assessment over two years from diagnosis.

ABSTRACT: BackgroundTo provide adequate support for persons with young-onset dementia (YOD) at the optimal time point, we need to know how their quality of life (QoL) changes over time.ObjectiveThe aim was to describe trajectories in self-reported QoL and health related QoL (HRQoL) scores over a period of two years in persons recently diagnosed with YOD, and to explore the feasibility of repeated longitudinal QoL assessments.MethodsThe study has a longitudinal explorative design. Persons with YOD (n = 33) were recruited at time of diagnosis and asked to complete a questionnaire including QoL-AD and RAND-36, every six months for two years. Questionnaire data were analyzed using Wilcoxon signed-rank tests. Differences between "completers" and "non-completers" were assessed using the independent-sample

SUBMITTER: Aspo M 

PROVIDER: S-EPMC12495120 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature