Music as Supportive Care for Young Children with Sickle Cell Disease and their Parents: A Three-phase Qualitative Exploration into the Cultural Relevance of Active Music Engagement with Black Families.

ABSTRACT:

Background

There is a marked absence of supportive care programs to address the significant distress experienced by young children with Sickle Cell Disease (SCD) and their parents. Active Music Engagement (AME) is an evidence-based music therapy intervention that uses dyadic music play to mitigate interrelated parent-child distress during cancer treatment. The purposes of this study were to explore the cultural relevance of AME for Black children and parents and its potential utility during SCD treatment.

Methods

We conducted a three-phase qualitative study that included interviews with five Black parents of children (ages 3-8 years) with SCD, interviews with four additional parents/children after experiencing a music therapist facilitated AME experience and focus group sess

SUBMITTER: Thomas N 

PROVIDER: S-EPMC12495199 | biostudies-literature | 2025 Jan-Dec

REPOSITORIES: biostudies-literature