An umbrella review of patient- and carer-reported measures for assessing adult end-of-life care quality outcomes.

ABSTRACT:

Background

Assessing end-of-life care quality is important yet selecting measures remains challenging. This umbrella review synthesizes evidence on measures for EOL outcomes-quality of life (QOL), care experience, quality of dying (QOD), and suffering.

Methods

We searched five databases for systematic reviews published, 01 January 2009-29 July 2025. Included reviews assessed QOL, care experience, QOD and suffering measures for terminally ill adults and caregivers. We used AMSTAR2 to assess review quality and reported psychometrics per COSMIN. This study is registered on PROSPERO (CRD42024610359).

Findings

From 30 reviews, we extracted 161 unique measures: 83 for QOL, 49 for care experience, 15 for QOD, and 14 for suffering. No single measure showed sufficient psychome

SUBMITTER: Malhotra C 

PROVIDER: S-EPMC12495440 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature