Consent in the practice of molecular HIV epidemiology: A qualitative study of the perspectives of diverse communities of interest.

ABSTRACT:

Background

The practice of using molecular HIV epidemiology (MHE) to enhance surveillance activities has generated much discussion, partly because it typically involves sequencing viral samples from persons living with HIV without their knowledge or consent.

Methods

Using individual, semi-structured in-depth interviews, we asked 41 individuals from a range of groups affected and/or involved in MHE and related health services in North Carolina their views about consent and MHE.

Findings

Although there was no unanimity of opinion, our interview participants were largely (82.5%) supportive using MHE for public health surveillance without obtaining consent, including those living with HIV, though there was also broad support across groups for raising public awareness abou

SUBMITTER: Rennie S 

PROVIDER: S-EPMC12500111 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature