Patient Advocacy Group Leaders' Perceptions on Primary Care's Role in Caring for Patients With a History of Breast Cancer.

ABSTRACT:

Background

Cancer advocacy groups engage patients, families and caregivers in navigating the cancer landscape, with a focus on early detection/screening and providing psychosocial and financial support during and after treatment. These groups are influential among their communities, funders and policymakers.

Objective

We wished to understand perceptions of breast cancer advocacy group leaders on primary care's role in breast cancer survivorship care, given limited primary care engagement despite endorsement by the National Cancer Institute (NCI).

Methods

As part of a larger NCI-funded study, we used purposive sampling to select leaders from a diversity of patient advocacy groups for in-depth interviews (n = 9). After obtaining consent, interviews were conducted and re

SUBMITTER: Barry K 

PROVIDER: S-EPMC12501495 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature