Factors influencing biospecimen collection in decentralized pregnancy and birth cohorts: A qualitative study.

ABSTRACT:

Introduction

Although decentralized research is being used more frequently, few data are available regarding barriers for potential subjects related to engaging in decentralized research with remote biospecimen collection, especially within pregnancy and birth cohorts that include individuals of diverse racial and ethnic backgrounds.

Methods

Focus groups and individual interviews with pregnant and postpartum women were conducted in English and Spanish. Thematic analysis was used to identify motivators and barriers to participation in decentralized research involving biospecimens.

Results

Sixty women (35% Hispanic/Latino, 23% Black, 18% Asian, 15% non-Hispanic White) participated in 10 focus groups (English = 8, Spanish = 2) and 11 individual interviews (English = 7, S

SUBMITTER: Weidner M 

PROVIDER: S-EPMC12505239 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature