Nationwide evaluation of readability, quality, and cultural sensitivity of online brain cancer education materials in the United States.

ABSTRACT:

Background

Patients with primary brain tumors navigate a devastating diagnosis and cognitive and physical decline. Available educational materials should be easily comprehensible, informative, reliable, culturally sensitive, and patient oriented.

Methods

We assessed websites of major brain tumor centers in the United States and patient organizations for readability using multiple calculators, quality and reliability using DISCERN and JAMA tools, and cultural sensitivity using the Cultural Sensitivity Assessment Tool scale. We determined whether sites addressed practical, emotional, social, and spiritual needs of a patient. Brain tumor centers were categorized based on NCI-designation and fulfillment of Guiding Principles developed by the American Brain Tumor Association.

SUBMITTER: Nilak J 

PROVIDER: S-EPMC12508747 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature