Impacts of patient advisory councils on recovery for sepsis survivors: a case study.

ABSTRACT:

Introduction

Sepsis is a life-threatening condition with significant long-term impacts for survivors and their families. The known benefits of patient engagement have led to increased efforts globally to involve survivors in sepsis research. This study aimed to characterize the experiences of sepsis survivors and their families in patient advisory councils (PACs) for two Canadian sepsis research networks (Action on Sepsis and Sepsis Canada) and explore how PAC involvement supports long-term recovery.

Methods

This mixed-methods cross-sectional study consisted of a structured survey, ten interviews, and one focus group discussion. All current members of the Sepsis Canada and Action on Sepsis PACs (n = 29) were invited to participate. The results of the survey were analyzed des

SUBMITTER: Sheehan M 

PROVIDER: S-EPMC12510491 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature