One-year follow-up of the new European reference network for pediatric cancers (ERN PaedCan) tumor board for pediatric CNS tumors: lessons learnt and future prospects.

ABSTRACT:

Purpose

European Reference Networks (ERN) are collaborative networks connecting healthcare professionals across Europe. A virtual multidisciplinary tumor board (VMTB) for children with central nervous system (CNS) tumors was established within the ERN for pediatric oncology (ERN PaedCan) in 2022. We report the experience with this new format.

Methods

A web-based questionnaire was distributed to physicians for cases presented between November 2022 and November 2023, addressing the implementation of provided recommendations, satisfaction and basic data about the local institution. Baseline information of the presented cases was taken from anonymized VMTB protocols.

Results

In the first year, 19 patients from 11 institutions located in nine European countries were discus

SUBMITTER: Sonksen M 

PROVIDER: S-EPMC12511263 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature