Barriers and facilitators to accessing support for people affected by rare dementias who are from culturally, ethnically and linguistically diverse backgrounds.

ABSTRACT:

Background

It can take several years for people with rare dementias to receive a diagnosis. People from non-White and linguistically diverse backgrounds are also often diagnosed with dementia later than their White, English-speaking counter parts. These factors are likely to delay access to support for people who have rare dementias and who are from diverse backgrounds. This study aimed to investigate facilitators and barriers to people with rare dementia diagnoses who are from culturally, ethnically and linguistically diverse backgrounds in accessing appropriate diagnostic and post-diagnostic support services.

Methods

Purposive sampling was used to recruit 10 people affected by a diagnosis of rare dementia who were from culturally, linguistically and/or ethnically diverse b

SUBMITTER: Volkmer A 

PROVIDER: S-EPMC12512257 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature