Exploring transition in epilepsy within ERN EpiCARE centers: Insights from a survey analysis.

ABSTRACT: The transition from pediatric to adult healthcare is a critical stage for young individuals with chronic neurological disorders, particularly those with rare and complex epilepsies. This paper aims to explore the practice of transition by healthcare providers within EpiCARE. Through a comprehensive questionnaire, developed in collaboration with European Patient Advocacy Groups, this study investigates the current management of transition and identifies key barriers hindering stakeholders' needs. The questionnaire was completed by 60 EpiCARE members. Half of the respondents reported existing written transition procedures in their centers. Findings reveal significant hurdles in dedicated transition services, with nearly half of the respondents indicating their centers lack such pipelines. A

SUBMITTER: De Giorgis V 

PROVIDER: S-EPMC12514393 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature