Australian research priorities for inherited retinal diseases: a James Lind Alliance priority setting partnership.

ABSTRACT:

Objectives

Inherited retinal diseases (IRDs) are a broad range of diseases associated with abnormalities/degeneration of retinal cells. We aimed to identify the top 10 Australian research priorities for IRDs to ultimately facilitate more meaningful and potentially cost-effective research.

Design

We conducted a James Lind Alliance priority setting partnership that involved two Australian-wide surveys and online workshops.

Setting

Australia-wide.

Participants

Individuals aged 16 years or older were eligible to participate if they had an IRD, were caregivers of an individual with an IRD or were health professionals providing care to this community.

Outcome measure

In Survey 1, we gathered participants' unanswered questions about IRDs. We grouped these into

SUBMITTER: Robertson EG 

PROVIDER: S-EPMC12519664 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature