A Qualitative Exploration of Caregiving in Advanced Dementia: Caregiver Perspectives on Unmet Needs in Low- and Middle-income Setting.

ABSTRACT:

Objectives

The complex and varied needs that people with dementia experience as they approach the advanced stage are context-specific and often unfulfilled. Caregiving is usually family-led and at home, with limited institutional support in low- and middle-income countries like India. The beginning of advanced stages can go under-recognised in the avalanche of overall caregiving demands unique to the prolonged disease trajectory. Limited understanding exists of the unmet needs at this stage. The present study aimed to gain insight into the caregivers' experiences and unmet needs in advanced dementia.

Materials and methods

A qualitative exploratory study with semi-structured interviews was conducted. Eight bereaved primary caregivers of people with dementia who were registere

SUBMITTER: Kumar GS 

PROVIDER: S-EPMC12530825 | biostudies-literature | 2025 Jul-Sep

REPOSITORIES: biostudies-literature