Patient-Reported Outcome-Based, Comprehensive Assessment of Quality of Life of Adults with Congenital Heart Disease in India.

ABSTRACT:

Background

The improved survival of patients with congenital heart disease (CHD) mandates a shift in focus towards an understanding of patient perspectives on outcomes, particularly focused on quality of life (QOL). This study represents the first systematic, prospective, comprehensive, patient-reported outcome measure (PROM) based QOL assessment of adult congenital heart disease (ACHD) patients in India.

Methods

PROM data from the Indian cohort of APPROACH-IS (Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study) I (2014) and II (2022)-prospective, cross-sectional international studies conducted at two major centers-were collated. PROMs that were recorded included the determinants of QOL, including physical compon

SUBMITTER: Sasikumar N 

PROVIDER: S-EPMC12533435 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature