Understanding Participant Perspectives Toward the Formation of a Participant Advisory Board Within the Reasons for Geographic and Racial Differences in Stroke Study: A National Qualitative Study.

ABSTRACT:

Background

Although often used to inform clinical trials and public health campaigns, academic-community partnerships have been less frequently used in the context of large, national epidemiologic studies. These partnerships could enhance key aspects of the research process if appropriately leveraged. We aimed to elicit perspectives toward the formation of a participant advisory board in the REGARDS (Reasons for Geographic and Racial Differences in Stroke) study, a national prospective cohort study that enrolled >30 000 Black and White community-dwelling adults aged ≥45 years from 48 states from 2003 to 2007 with ongoing follow-up.

Methods

For this qualitative study, we used a convenience sampling approach to recruit participants. We conducted semistructured virtual intervie

SUBMITTER: Brooks MS 

PROVIDER: S-EPMC12533650 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature