Primary and secondary caregiver burden of cognitive impairment associated with schizophrenia: a qualitative study based on caregiver interviews.

ABSTRACT: Cognitive impairment associated with schizophrenia (CIAS) places a significant burden on patients and caregivers. This study explored the burden experienced by primary (informal) and secondary (formal) caregivers. A secondary qualitative analysis was performed on interviews from a Schizophrenia Cognition Rating Scale (SCoRS) confirmation study. Thematic analysis was utilised to investigate the characteristics of caregiver burden. Quotes were analysed across 3 levels (Level 1: caregiver experience of patient cognitive symptoms; Level 2: caregiver experience of patient burden; Level 3: overarching caregiver burden) to establish themes. Subsequently, themes were mapped to SCoRS domains. Twenty primary caregivers and 20 secondary caregivers were enrolled. Caregivers described patient difficult

SUBMITTER: Tulliez S 

PROVIDER: S-EPMC12534598 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature