Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study.

ABSTRACT:

Purpose

Informal carers of people with cystic fibrosis (PwCF) play a critical role in care provision, yet the impact of caregiving on their quality of life (QoL) remains underexplored. We aimed to assess the effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the UK.

Methods

We conducted a cross-sectional online survey study administering a structured questionnaire with four validated measures (EQ-5D-5L, CarerQol-7D, ReQoL-10 and ASCOT-Carer). We used a carer-reported severity scale of cystic fibrosis to define severity groups. Statistical methods included descriptive analyses and ordinary least squares (OLS) regression to examine the association between carer utility and CF severity.

Results

We find significant d

SUBMITTER: Chowdhury S 

PROVIDER: S-EPMC12535523 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature