Sexual orientation and gender identity data: An observational study assessing the feasibility of SOGI collection in clinical research and patient assistance programs.

ABSTRACT:

Purpose

Sexual and gender minority (SGM) people often experience significant health disparities and poor health outcomes. The objective of this study was to assess the feasibility and outcomes of sexual orientation and gender identity (SOGI) data collection in 2 distinct survey settings: (1) clinical research and (2) patient assistance programs.

Materials and methods

In this survey study, participants completed 1 of 2 separate, distinct, self-reported, optional, United States-based surveys: (1) an in-person survey at clinical research sites for a cough or cardiac study between December 2022 to December 2023 (sponsored by Genentech) or (2) a web-based patient assistance program survey from a patient assistance program between January 2023 to December 2023 (sponsored by the Ge

SUBMITTER: Brown I 

PROVIDER: S-EPMC12543137 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature