Feasibility and safety of sailing based rehabilitation for rare skeletal disorders using wearable sensors and patient reported outcomes.

ABSTRACT: Rare skeletal disorders (RSDs) cause disability, pain, and reduced quality of life (QoL), with limited access to effective rehabilitation. This pilot study evaluated the feasibility, safety, and preliminary effects of a sailing-based rehabilitation program for adolescents with RSDs, integrating wearable inertial sensors and validated patient-reported outcomes. Eight adolescents (12-18 years) with RSDs participated in a five-day sailing intervention focused on physical activity, social interaction, and psychological reflection. Feasibility (recruitment, retention, adherence, acceptability) and safety (adverse events) were primary outcomes. Secondary measures included QoL (EuroQol 5-Dimension), psychological well-being (Pediatric Outcomes Data Collection Instrument, Rosenberg Self-Esteem Sca

SUBMITTER: Boarini M 

PROVIDER: S-EPMC12549867 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature