Participation of ethnic minorities in Parkinson's research: challenges and needs. A qualitative study.

ABSTRACT:

Objective

To explore barriers to participation in Parkinson's disease (PD) research trials amongst ethnic minority (EM) individuals in the UK and to identify potential strategies to improve inclusivity.

Design

A qualitative study using semi-structured interviews and thematic analysis.

Setting

Participants were recruited primarily through community outreach in the UK.

Participants

Twenty-one individuals diagnosed with PD, self-identifying as belonging to EM groups, participated in the study. The sample included individuals from South Asian, Black African and Middle Eastern backgrounds.

Results

Five themes were identified: (i) Lack of Awareness of Research Opportunities; (ii) Mistrust and Misconceptions about Research, where fears and misunderstandings abo

SUBMITTER: Ramadhan M 

PROVIDER: S-EPMC12551381 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature