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Supporting public involvement in defining estimands: a practical tool accessibly explaining the five key attributes of an estimand.


ABSTRACT:

Background

An estimand is a precise description of the treatment effect a trial is aiming to find out. We previously identified that public partners (defined as patients and/or members of the public who are part of the research team) want to be involved in establishing estimands during trial planning. This involvement helps to ensure that trials address the questions that matter most to patients and the public. To initiate this, we co-developed a tool with public partners to help researchers explain the concept of an estimand in an accessible way. However, for public partners to be actively involved in defining estimands, the scientific terms used to describe the five attributes of an estimand must be further broken down. Accessible terms to describe estimand attributes would also

SUBMITTER: Cro S 

PROVIDER: S-EPMC12560361 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature