Responsible Sharing of Qualitative Research Data: Insights From a Pioneering Project in the United States.

ABSTRACT: Qualitative research data, such as data from focus groups and in-depth interviews, are increasingly made publicly available and used by secondary researchers, which promotes open science and improves research transparency. This has prompted concerns about the sensitivity of these data, participant confidentiality, data ownership, and the time burden and cost of de-identifying data. As more qualitative researchers (QRs) share sensitive data, they will need support to share responsibly. Few repositories provide qualitative data sharing guidance, and currently, researchers must manually de-identify data prior to sharing. To address these needs, our QDS team worked to identify and reduce ethical and practical barriers to sharing qualitative research data in health sciences research. We develop

SUBMITTER: Walsh HA 

PROVIDER: S-EPMC12577765 | biostudies-literature | 2025 Jan-Dec

REPOSITORIES: biostudies-literature