Methodological study protocol for The European Atlas of clinical trials in cancer and haematology.

ABSTRACT:

Introduction

Inequalities in access to clinical trials in cancer, haematology and rare diseases, along with the inconsistent incorporation and reporting of patient reported outcome measures (PROMs) are a long-addressed issue by patient communities. The European Atlas on Clinical Trials in Cancer and Haematology (EuroACT) is a patient-led investigation assessing regional inequalities in access to clinical trials, the frequency and type of patient reported outcome (PRO) data collection in trials, and the reporting of PRO findings in selected solid tumours, malignant/non-malignant haematological conditions and rare diseases across Europe.

Methods and analysis

This protocol outlines the development of three comprehensive datasets [i.e., clinical trials, patient reported outcome

SUBMITTER: Cases M 

PROVIDER: S-EPMC12580590 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature