Feasibility, acceptability, and preliminary efficacy protocol of an intervention for caregivers of hospice patients living with dementia: A pilot randomized control trial.

ABSTRACT:

Introduction

Caring for dying persons living with dementia (PLwD) poses substantial challenges for family care partners (FCPs), who often experience significant emotional and physical strain. Home hospice provides support to enable home death, including support for FCPs. We are pilot testing a home hospice intervention (Enhancing Dementia Instruction and Tool in Home Hospice Care (EDITH-HC)) to reduce FCP burden and improve care for PLwD. This pilot test assesses feasibility, acceptability, and preliminary efficacy using a non-blinded randomized clinical trial (RCT).

Methods

We aim to match 24 hospice nurses and social workers ("clinicians") with 96 FCPs of home hospice PLwD. Clinician teams are randomized to the intervention or control condition using an adaptive randomized

SUBMITTER: Tamer E 

PROVIDER: S-EPMC12582434 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature