Development of the SAVE study protocol to use lived experience to assess the value of serious health-related suffering and palliative care.

ABSTRACT:

Background

Suffering generated by life-limiting or life-threatening conditions is a complex phenomenon inextricably linked with human experience. Most of this suffering can be ameliorated with adequate access to palliative care that is unavailable in much of the world, especially low-resource settings. Exploration of the definitional boundaries of and needs pertaining to suffering due to illness suggests that patients and families assign specific importance to the compassionate and supportive aspects of palliative care. However, the intrinsic and personal value of suffering alleviation has not been systematically studied in low- and middle-income countries, where it is direly needed.

Methods

SAVE (Suffering Alleviation and the Value of Experiential knowledge) protocol is dev

SUBMITTER: Bhadelia A 

PROVIDER: S-EPMC12586432 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature