Exploring endometriosis community needs to co-create the EndoZone digital health platform: a qualitative research study.

ABSTRACT:

Background

Endometriosis is a chronic inflammatory condition that is associated with painful periods and a variety of co-morbid symptoms for 10% of women and people presumed female at birth globally and upto 14% in Australia. Poor community and medical endometriosis awareness commonly leads to the normalisation of symptoms and dismissal of diagnostic or treatment needs. Community members often search for endometriosis information online. We explored the digital needs of those affected by endometriosis to support the co-creation of EndoZone, an evidence-based platform.

Methods

Thirty-six people participated in eight semi-structured focus group discussions conducted across Australia between March-May 2020. One was conducted face-to-face and the remaining focus groups were cond

SUBMITTER: Sirohi D 

PROVIDER: S-EPMC12604226 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature