Assessment of Health-Related Quality of Life in Patients with Active Versus Inactive Adult-Onset Still's Disease: Data from the PRO-AOSD Survey During the COVID-19 Pandemic.

ABSTRACT: Background/Objectives: To report patients' perspectives on the impact of adult-onset Still's disease (AOSD) on their health-related quality of life (HRQoL), work productivity and the effect of coronavirus (COVID)-19, using data from the PRO-AOSD (patient-reported outcomes adult-onset Still's disease) survey in Germany. Methods: The PRO-AOSD survey comprised blinded patient and physician surveys. An additional post-hoc analysis was performed to determine the relationship between HRQoL and disease activity (defined per C-reactive protein and Physician's Global Assessment data). The following outcomes were reported: patients' perspectives on the impact of AOSD on their physical and mental HRQoL and work productivity, outcomes for patients with active versus inactive disease, and

SUBMITTER: Blank N 

PROVIDER: S-EPMC12610029 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature