Recovering From Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis.

ABSTRACT:

Importance

Stevens-Johnson syndrome and toxic epidermal necrolysis (SJS/TEN) survivors experience substantial long-term sequelae. Research on physical symptoms experienced during acute hospitalization is well documented, but limited studies have been completed on the long-term biopsychosocial effects of SJS/TEN, particularly from the patient's perspective.

Objective

To increase the understanding of the long-term complications of SJS/TEN.

Design, setting, and participants

This qualitative investigation was completed from within a community-based study, the SJS Survivors Study, using a semistructured, in-depth interview guide to query participants about their SJS/TEN experience postdischarge from the hospital. Interviews took place by phone from July 2021 through August

SUBMITTER: Martin-Pozo MD 

PROVIDER: S-EPMC12613091 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature