Parents' Experiences of Family-Centred Care in Home-Based Paediatric Care of Their Child With Life-Limiting Illness: A Qualitative Descriptive Study.

ABSTRACT:

Aim

To describe parents' experiences of family-centred care in home-based paediatric care of their child with a life-limiting illness.

Design

A qualitative descriptive study with semi-structured interviews.

Methods

The purposive sample of parents (n = 11) of children diagnosed with life-limiting illnesses and receiving home-based paediatric care was recruited from a university hospital in Finland. The semi-structured interviews were conducted between December 2020 and December 2021. The data were analysed using deductive-inductive content analysis.

Results

Under the five themes of family-centred care, 11 main categories and 31 subcategories were identified. The main categories were (1) uniqueness of all family members as care recipients, (2) incorporating famil

SUBMITTER: Sari K 

PROVIDER: S-EPMC12623667 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature