Perspectives on meaningful dementia treatment and care from those with lived experience.

ABSTRACT: The ongoing conversations surrounding the importance of minimal clinically important differences and descriptions of meaningful impacts must include the voices of those living with Alzheimer's disease and related dementias. To provide this perspective, members of the Alzheimer's Association Early Stage Advisory Group were asked to describe what matters most to them, their experiences with treatment, how they define meaningful care, and what would provide them with feelings of progress and hope. Responses offer differing yet complementary definitions of a quality life, ways in which clinicians and providers can recognize and support the person behind the diagnosis, and how participating in clinical trials can bring hope - both now and for the future. By centering on the lived experiences an

SUBMITTER: Moczygemba W 

PROVIDER: S-EPMC12627961 | biostudies-literature | 2025 Oct-Dec

REPOSITORIES: biostudies-literature