Psychological distress, quality of life, needs, and resources among informal caregivers in specialist palliative home care.

ABSTRACT:

Purpose

Informal caregivers (ICs) of patients with advanced incurable diseases experience psychological distress, unmet needs, and impaired health-related quality of life (HRQOL). While research on ICs in inpatient palliative care is expanding, less is known about their specific problems, needs, and resources in palliative home care settings.

Methods

This cross-sectional, single-center study consecutively recruited 76 adult ICs within 72 h of initiating specialist palliative home care. ICs completed standardized questionnaires assessing psychosocial distress, anxiety, depression, importance and fulfilment of needs, HRQOL, social support, and sources of meaning. Descriptive and regression analyses were conducted to explore associations between outcomes.

Results

The res

SUBMITTER: Ullrich A 

PROVIDER: S-EPMC12628468 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature