Rare disease education in medical schools: patient-centered and innovative strategies.

ABSTRACT:

Purpose

Globally, approximately 300 million people live with a rare disease, while in the United States, nearly 30 million, or 1 in 10 Americans, have a rare disease or disorder (RD) (The Lancet Global Health. Lancet Glob Health 2024. https://doi.org/10.1016/S2214-109X(24)00244-0 ; National Center for Advancing Translational Sciences. Rare disease day at NIH 2024; 2024). Despite the prevalence of RDs, many physicians do not have adequate awareness of RDs or training to care for RD patients. RD advocates are focusing on undergraduate medical education to improve timely and quality care for RD patients. Thus, in 2023, the authors conducted an RD patient panel at their medical school and a scoping review of global medical schools' approaches to integrating RD education into their curr

SUBMITTER: Huynh S 

PROVIDER: S-EPMC12632075 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature