Patient-Oriented Priorities for Pediatric Erythromelalgia: A Priority-Setting Process.

ABSTRACT: Background/Objectives: Erythromelalgia is a rare condition characterized by burning pain, redness, and warmth primarily in the extremities, usually worsened by heat and alleviated by cold. The objective of this study was to identify the top 10 priorities in pediatric erythromelalgia from multiple perspectives, including clinicians, people with lived experience of childhood-onset erythromelalgia, and their family members. Methods: A modified James Lind Alliance Priority-Setting Process was conducted. The top priorities were identified through four phases: (1) an international online survey to gather priorities, (2) data processing, (3) an interim prioritization online survey, and (4) a virtual workshop to set the final priorities. Results: In phase 1, 185 potential prio

SUBMITTER: Ocay DD 

PROVIDER: S-EPMC12650981 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature