Phenotyping Neurodisability in Hospital Records in England: A National Birth Cohort Using Linked Administrative Data.

ABSTRACT:

Background

Children with neurodisability often have complex healthcare and educational needs. Evidence from linked administrative health and education data could improve joint working between services.

Objective

To develop a diagnostic code list to identify neurodisability in hospital admission records; to assess the representativeness of this phenotype by characterising children with hospital-recorded neurodisability and their outcomes.

Methods

We developed a national cohort of singletons born in England between 2003 and 2009, including a nested cohort of children enrolled in primary school, using linked health and education data from the Education and Child Health Insights from Linked Data (ECHILD) database. With expert clinicians, we developed an algorithm based on

SUBMITTER: Zylbersztejn A 

PROVIDER: S-EPMC12658309 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature