Development of the Cystic Fibrosis Stress Questionnaire: testing and validation.

ABSTRACT:

Objective

Care guidelines for cystic fibrosis (CF) recommend annual screening for anxiety and depression using standardised measures, the Patient Health Questionnaire (PHQ-9) and the Generalised Anxiety Disorder Scale (GAD-7). Research in other chronic illness groups such as diabetes has demonstrated that illness-specific distress predicts daily functioning above and beyond depression alone. To address the need for a measure of illness-specific distress, we developed and validated the CF Stress Questionnaire (CFSQ), which could serve as a meaningful adjunct to mental health screening.

Methods

We developed a CF-specific measure of perceived stress with multiple phases of input from our patient population. We then conducted a multisite CFSQ validation study with 200 adults wit

SUBMITTER: Snell CJ 

PROVIDER: S-EPMC12682168 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature