Patient-Reported Outcome Measures in Fetal Medicine: A Pilot Feasibility Study.

ABSTRACT:

Objective

A core set of generic Patient Reported Outcome Measures (PROMs) was recently developed to collect information from patients about their health status and quality of life. This study aims to: (1) identify relevant Patient Reported Outcome Measures (PROMs) from this core set for parents facing a fetal anomaly diagnosis and determine their optimal use and (2) assess the usability and feasibility of the adapted setting-specific PROMs in a Dutch Fetal Medicine Department.

Method

A diverse expert panel of parents and healthcare professionals selected relevant PROMs along with their optimal timing and application. In a subsequent pilot feasibility study, parents completed the PROMs and discussed results with professionals. Responses were converted to T-scores using the PR

SUBMITTER: Crombag NMTH 

PROVIDER: S-EPMC12693008 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature