Italian Systemic Lupus Erythematosus (SLE) Patients: Overview of Their Quality of Life and Unmet Needs.

ABSTRACT: Background/Objectives: Systemic Lupus Erythematosus (SLE) is a multifactorial disease that significantly affects patients' quality of life (QoL) and poses management challenges. This project combined a nationwide patient listening initiative with an Advisory Board (AB) to identify unmet needs and perceptions, aiming to integrate patient perspectives into decision-making and enhance SLE care. Methods: The "PaLESiamoci!" project, conducted by IQVIA with two patient organizations (Gruppo LES Italiano and APMARR), included both qualitative and quantitative phases. Ten patients completed disease diaries and one-hour interviews, while 151 others voluntarily filled a PO-administered survey including the validated 12-item Medical Outcome Short Form (SF-12) and items on physical, emot

SUBMITTER: Moroni L 

PROVIDER: S-EPMC12693608 | biostudies-literature | 2025 Nov

REPOSITORIES: biostudies-literature