Establishing an electronic patient-reported outcome (ePRO) for patients with endometriosis and chronic pelvic pain: A pilot feasibility study.

ABSTRACT:

Introduction

Endometriosis and chronic pelvic pain (CPP) are complex conditions that significantly impact quality of life. Few tools systematically capture patient-reported outcomes in this population. This pilot study evaluated patients' experiences and the perceived usability of an electronic Patient-Reported Outcome (ePRO) tool to assess its feasibility in supporting a clinical data registry. Associations between demographic/clinical characteristics and ePRO usability were also explored.

Methods

This prospective observational study included patients enrolled at a tertiary endometriosis and CPP clinic who completed a REDCap-based ePRO survey remotely. The survey included demographic items and 13 validated instruments assessing pain, psychological distress, sensory processi

SUBMITTER: Randle E 

PROVIDER: S-EPMC12695500 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature