Consumer health technology data in the German healthcare system: Stakeholder perspectives, ethical challenges, and governance pathways.

ABSTRACT:

Objectives

The paper explores how data generated by consumer health technologies can be used responsibly for research in the German healthcare system. It aims to identify perceived benefits, obstacles, and ethical concerns from different stakeholder groups and to interpret these perspectives through the framework of data solidarity.

Methods

The study employed an explorative qualitative design: data were collected in cross-sector group discussions, semistructured follow-up interviews, or written responses to the interview guide. Stakeholders included healthcare professionals, statutory health insurance representatives, medical researchers, digital health developers, and experts on data governance and ethics.

Results

Stakeholders highlighted several potential benefits o

SUBMITTER: Baumann M 

PROVIDER: S-EPMC12696318 | biostudies-literature | 2025 Jan-Dec

REPOSITORIES: biostudies-literature