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Recognition, remuneration and reimbursement of patient and public involvement partners in pragmatic randomised controlled trials. A survey of author practices.


ABSTRACT:

Background

Patient and public involvement (PPI) in the design and conduct of clinical trials has been increasingly encouraged by funders as an essential ingredient in the conduct of research. Recognition of PPI partners through acknowledgement or authorship, and financial supports, including remuneration and reimbursement, may facilitate involvement. However, little empirical data exists regarding current practices of recognising, remunerating and reimbursing PPI partners for their contributions to research.

Aims

To describe the extent to which patient and public partners are recognised and remunerated for their involvement in a cohort of pragmatic randomised controlled trials (RCTs).

Methods

Cross sectional survey of corresponding authors of pragmatic RCTs published

SUBMITTER: Nicholls SG 

PROVIDER: S-EPMC12696921 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature