Community consultation for exception from informed consent studies: are market research surveys representative of the target community populations?

ABSTRACT:

Background

'Exception from informed consent' research requires community consultation to ensure that the views of the local population have been considered. Using market research companies to distribute surveys across local populations is attractive because it ensures adequate response rates. It is not known whether individuals who respond to surveys are typical of the targeted communities. The purpose of this study is to compare the demographics of the survey respondents with that of the general population in the same area.

Methods

This is an analysis of data collected as part of the 'Trauma Resuscitation with Group O Whole Blood or Products' (TROOP) trial. The surveys used a commercial market research service to reach the communities of interest and consisted of 18 questio

SUBMITTER: Stephens SW 

PROVIDER: S-EPMC12706250 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature