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ABSTRACT: Introduction
Tools to document communicative ability in people living with primary progressive aphasia (PwPPA) are limited. This work describes the development of a strengths-based and ecologically-valid instrument-the Progressive Aphasia Communication Toolkit (PACT).Methods
This work consisted of five experiments: two to develop (Experiments 1 and 2) and three to pilot (Experiments 3-5) a novel instrument for PPA. Ninety-five individuals worldwide contributed to this work: 80 researchers and clinicians, 9 PwPPA, and 6 care partners.Results
Experiments 1-2 culminated in an instrument comprising four scales that capture quantitative and qualitative feedback. Experiments 3-5 resulted in structural refinement and digitization of the tool, revealed PwPPA and care
SUBMITTER: Gallee J
PROVIDER: S-EPMC12706597 | biostudies-literature | 2025 Dec
REPOSITORIES: biostudies-literature