Greek Registry for Amyotrophic Lateral Sclerosis (ALS-GR): An Observational Cohort of Individuals With ALS Across 11 Specialized Centers in Greece.

ABSTRACT:

Background

Epidemiological studies on amyotrophic lateral sclerosis (ALS) in Greece are scarce and outdated.

Methods

We performed an observational cohort study in 11 specialized centres across Greece. Adult individuals with ALS diagnosed based on the Gold Coast criteria were recruited. Data were collected on socio-demographics, somatometrics, comorbidities, early life exposures, disease-related parameters, riluzole intake, motor and non-motor symptoms, as well as functional progression. Follow-up evaluations were scheduled on approximately 6-9-12-18-24 months. Our aim was to identify shortcomings in the monitoring of patients with ALS in specialized centers, delineate the course of the disease, and capture factors related to the earlier occurrence of ALS and potential diagno

SUBMITTER: Liampas I 

PROVIDER: S-EPMC12710438 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature