A Living Ethics Project to Address Psychological Distress in Chronic Illness: Process and Outcomes.

ABSTRACT:

Introduction

Individuals living with a complex or rare chronic disease live a life where the use of healthcare services and self-care are part of their quotidian and even of their identity. They may, as a result, experience significant psychological distress. Yet, specialized healthcare providers (HCPs) who manage their care are often ill-equipped to respond to the emotional or social dimensions of their patients' illness and intervene in a meaningful way.

Methods

In this paper, we report on the process and outcomes of a living ethics project, structured as a living lab. The living lab followed a five-phase methodology, each phase involving various research methods (e.g., semi-structured interviews, group interviews) and oriented toward distinct tasks: identifying the issue

SUBMITTER: D'Anjou B 

PROVIDER: S-EPMC12710513 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature