The experience of children using long-term non-invasive ventilation: a qualitative study.

ABSTRACT:

Objectives

To identify factors to optimize long-term non-invasive ventilation (LT-NIV) use by exploring the experience of children using LT-NIV and their parents.

Study design and methods

A qualitative framework analysis method was used. Children aged 8-12 years who used LT-NIV for at least 3-months and their parents/guardians were approached to participate. Thematic analysis of data derived from focus group interviews, conducted separately for children and parents, was performed. Findings were coded and grouped into identified themes.

Results

Data analysis identified four themes: (1) "The double-edged sword," which identified benefits and challenges of LT-NIV use; (2) "Feeling different," where children and parents described fears, frustrations, and concerns includin

SUBMITTER: Olmstead D 

PROVIDER: S-EPMC12713816 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature