Community-for-Care: An Integrated Response to Informal Post-Caregivers.

ABSTRACT:

Background/objectives

Informal caregivers play a crucial role in healthcare, but when caregiving ends the "post-caregivers" often remain invisible and unsupported. Post-caregivers face needs such as reconstructing their identity and finding space and time to grieve. This study aimed to design a support network for informal post-caregivers by exploring perceptions of diverse stakeholders.

Methods

A qualitative inductive study was conducted using three focus groups (n = 15; ages 35-70; 12 women, 3 men) held online between June and July 2023. Participants included palliative care team members, home support professionals, general practitioners, informal caregivers, post-caregivers, and members of civil society. A semi-structured guide was used, and narratives were analyze

SUBMITTER: Afonso CIC 

PROVIDER: S-EPMC12733144 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature