The Patient Journey in Interstitial Lung Disease: Mobility, Independence, and Psychological Burden.

ABSTRACT: Background: Interstitial lung diseases (ILDs) profoundly affect daily life, limiting mobility, independence, and emotional stability. While antifibrotic therapies may slow physiological decline, the living experience-characterized by breathlessness, cough, frailty, and psychological distress-remains insufficiently understood; this study therefore aimed to capture real-world patient perspectives on functional capacity, self-management, and mental health to identify treatable traits beyond conventional physiological measures. Materials and Methods: A cross-sectional quantitative online survey was conducted between September 2024 and January 2025 by Lungenfibrose e.V. in collaboration with the Center for Interstitial and Rare Lung Diseases (ZISL), Universities of Giessen and Mar

SUBMITTER: Krauss E 

PROVIDER: S-EPMC12733495 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature