Humanistic burden and medical care patterns of real-world patients with myasthenia gravis in Japan.

ABSTRACT:

Introduction

Myasthenia gravis (MG) is a rare autoimmune disease characterized by skeletal muscle weakness. As limited real-world data are available in Japan, we aimed to describe the humanistic burden of disease (primary aim), mainly with regards to health-related quality of life (HRQoL), and treatment patterns (secondary aim) in patients with generalized MG (gMG).

Methods

Data were drawn from the Adelphi Real World MG Disease Specific Programme™, a cross-sectional survey of neurologists and their patients in Japan from August 2023 and January 2024. Analyses were descriptive.

Results

Overall, 40 neurologists reported data for 128 patients, where 29 patients had self-reported data. Mean (standard deviation) patient age was 57.9 (16.0) years and 53.9% were female. At d

SUBMITTER: Kasahara-Kiritani M 

PROVIDER: S-EPMC12742322 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature